I'm not sure if you have heard of sweet Avery Canahuati , but if you haven't then you need to immediately go read her blog! You can also watch a news story about her HERE.
*Warning, you may want some tissues*
*Warning, you may want some tissues*
Avery is the just the cutest 5 month old baby girl, who has been diagnosed with SMA (Spinal Muscular Atrophy) a rare genetic disorder, with no cure. Her maximum life expectancy is 18 months. I cannot even begin to imagine the emotions her parents are feeling now. However they have decided that instead of drowning in grief that they are going to celebrate her life. They have even created a bucket list for her.
Their goal is to get the word out about SMA so that one day there may be a cure. Won't you go read about sweet Avery's story and spread the word?
4 comments:
I can't even imagine how her parents must feel. I am a complete wreck just from reading her story. Her parents are amazing in spite of the very worst thing in the world. Earlier today I was upset because our car has an issue and it's going to cost an arm and a leg to fix it. Stories like this sure put my bad mood into perspective. Thank you for sharing this- I will definitely be passing it on.
Ok thanks for making me cry again today!
That is so sad :( I cannot imagine how they are feeling right now. My little one is almost 13 months old and I can't imagine someone telling me I'd only have the maximum of 5 months left with her :( But I hope they embrace every moment they have with her. And I know there's no earthly cure, but I know a miracle maker that can cure her in a second!
Oh my, certainly puts a day into perspective. Thank you for sharing this Mallorie♥
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